Mediacheck

Don't Write about Me Just Because I'm Disabled

When reporters can't see past a person's disability, they can miss the real story.

By Lisa Coriale, 18 Mar 2010, TheTyee.ca

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Coriale: 'I was labeled a superhero.'

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According to Statistics Canada's 2006 Participation and Activity Limitation Survey, there are 4.4 million people with disabilities in Canada. Despite representing such a large percentage -- 14.3 per cent -- of the Canadian population, people with disabilities often feel isolated, in part because they seldom see or hear people like themselves in the mainstream media.

The media as a whole plays a key role in shaping and perpetuating public attitudes and values. However, more often than not, people with disabilities are viewed as objects of fear and curiosity rather than as productive members of society.

The media has the power to be a platform for social change. Historically, the media has encouraged debate and supported those who stand against oppressive practices. By continuing to stereotype people with disabilities, however, the media perpetuates myths, isolates millions and neglects to present an accurate picture.

The way people with disabilities are covered is problematic because it suggests attention is merited only when a person with disabilities can be portrayed as a superhero or a victim.

Don't feel sorry for me

For example, I was labeled a superhero. In an article that appeared in Kamloops This Week in May 2007, shortly before my graduation from Thompson Rivers University's social-work program, the reporter portrayed me as "a climber of a Mayan temple." He said I had been climbing pyramids since the day I was born.

In my view, receiving a social-work degree is something anyone can do. I was doing what I wanted to do. It wasn't something that should enable me to be elevated to a higher pedestal. My portrayal in the story made me feel everyone was placing expectations on me and I had to accomplish them. I could have inspired other people or I could have made them feel they were not capable of accomplishing the same. (On the other hand, sometimes I feel as though I have climbed many mountains, so it is a bit of a contradiction.)

At other points in my life, such as when I was featured in an article in the Elliot Lake Standard, I have been portrayed with pity as well as having superhero status: "Though bound to a wheelchair, unable to move her limbs, her voice silenced by a severe form of cerebral palsy."

When I see myself portrayed this way, I feel uncomfortable because I do not want people to feel sorry for me. I do not feel mentioning my disabilities was necessary. By stating I was wheelchair-bound, the reporter made it sound as though I'm not able to participate in daily activities.

The media places much emphasis on portraying people with disabilities as victims and heroes, which causes people with disabilities to feel they might not be normal unless they fit into one of these stereotypical categories. Others probably view people with disabilities the same way. This creates a distorted picture of our society.

A 2000 study conducted by British researchers Caroline Cooke, Liz Daone, and Gwilym Morris, entitled "Stop Press -- How the Press Portrays Disabled People," recorded the number of times negative words were used in news media to describe disabled people. Negative terms were often used in stories involving people with developmental and psychiatric disabilities. Words regularly used included handicap, cripple, wheel-chair bound/confined and sufferer. Other words used included vulnerable, abnormal, damaged, retarded, hopeless and afflicted.

It is essential the media portray people with disabilities fairly and properly in order to educate and change society's perceptions. Triumph over tragedy has a place but journalists should be selective in the areas in which this frame is used. People with disabilities should be portrayed accurately and not over-the-top.

Below are a few suggestions open-minded journalists can use to write engaging stories involving disability issues:

Replace passive words with active words. Avoid using terms like (the) handicapped, afflicted by, suffers from, victim of, confined to a wheelchair, wheelchair-bound, mentally handicapped/subnormal, cripple, invalid, the disabled, able-bodied. Use instead, disabled people, has (the condition or impairment), wheelchair user, has a learning disability, disabled person, disabled people, person who has cerebral palsy, non-disabled.

Mention a person's disability only if it is necessary to the story. Explore the context. Beware of accenting negativity and loss.

The same is true when it comes to medical details. There's nothing wrong with discussing when someone is experiencing difficulties, but try to avoid exaggeration and assumptions.

Speaking of assumptions, journalists should never assume their assessment of a person's disability is correct. Ask the person directly.

The British study also found disabled people and disability issues were not recorded accurately or objectively. When people with disabilities were portrayed in the media, their medical conditions were often sensationalized, again placing people with disabilities on a pedestal.

The study found national newspapers tended to focus on health, medical research and legal issues while local newspapers emphasized stories dealing with fundraising in connection to people with disabilities. The most common categories were the "brave disabled person raising money for a worthy cause" and "the family member advocating on their behalf." In the brave disabled-person category, subjects were seen as heroes with superhuman qualities or individuals needing charity.

Missing from the press was any exploration of why disabled people and their families were forced to fundraise for necessary services or equipment in the first place. None of the papers paid much attention to issues like education or employment.

A cancelled conversation

What society needs to realize is that people with disabilities are concerned about their everyday happenings like everybody else.

From 1998 to 2007, the CBC produced Moving On, which was broadcast across Canada and reported how issues like the workplace, health, technology, relationships, arts, sports and recreation related to disabled people in their everyday lives. At its prime, the program's weekly audience averaged 200,000 viewers.

But, after a decade on the air, CBC cancelled the program, attributing the decision to low ratings. The Canadian Media Guild, which represented workers with the show, said the cancellation reflected other factors including how far off the public agenda disabilities issues had fallen.

By reporting fairly and accurately and knowledgeably, journalists can play a major role in reshaping the way people with disabilities are viewed by themselves and by others in the community and returning the issue to the public agenda. It absolutely needs to be done.  [Tyee]

10  Comments:

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  • sambvan

    1 year ago

    Great article, Lisa. Thanks

    Great article, Lisa.
    Thanks for highlighting what types of language journalists and researchers _should_ be using.

    At the newspaper editorial level, I would add that policy needs to change so op-ed pieces and columnists did not include "lame" as a substitute for something that is stupid, for all of the very valid reasons you've pointed out.

  • cocean

    1 year ago

    Article long past due

    Terrific article.

    Re portrayal of people with disabilities as courageous, I'd always been taken aback by media portrayals of Michael J Fox, portrayals he never corrected.

    Fox, former star of Family Ties and other situation comedies, established a foundation to fund research into Parkinson's Disease.

    I never understood what was courageous about that. For one thing, he began his charity work soon after he was diagnosed with Parkinson himself. So wouldn't it just make sense that if you're famous, you'd use your name to promote a cause you believed in, especially when it so intimately affects you? What's courageous about that?

  • dave49

    1 year ago

    Paralympics coverage

    Great article given the Paralympics being on and the difference between the Olympics coverage and the Paralympics coverage.

  • barney

    1 year ago

    "living life to the fullest"

    There's also a veiled implication in the following cliche often found in references to disabled people: they are always said to be living life to the 'fullest,' implying a lack of something. Or implying that they are less full than non-disabled persons.

    No one lives life to the fullest, as though every day were their precious last. That's as much nonsense for disabled people as it is for non-disabled people. We all have good days and bad days. We all have full days and lazy, mental health days. We all just live, to one extent or another, and to varying degrees of ability.

    I also don't like all the "you can do anything you want in this world" jargon that often gets appended to disabled people. I, as a chubby, aging, uncoordinated, unathletic Canadian person is no more able to walk in and join the Royal Winnipeg Ballet than is Rich Hansen able to run in the 100m dash at the next Olympics. We can't do anything we want. But we can accomplish much within our limitations.

    All the disabled friends I have exhibit a remarkable sense of pragmatism about life, and vehemently resist labels and tags of pity cloaked in concepts of futile idealism and pipe dreams.

  • mary jane

    1 year ago

    isolation / hunger etc

    Many people with limitations / disablities cannot afford enough proper FOOD or clean cheap HOUSING that would leave them funds for other things. Most of the disabled are short about $400 per month to be able to eat 2 good meals a day.

    These people do not have any mercy from gordo and gang since the reign or terror began. Its hard to find proper medical care If a doctor wants certain items for his patient or a therapy - there won't be enough for it to make any real difference. gordo removed the small amount that was lerft after the ndp took a large slice of medical benefits that actually help a person get healthy and back to work.

    Now many doctors float around the province or is it the world.

    Nor can the disabled access the equipment to get involved with sports in many communities.

    About 8 - 10 years ago a person could go to the hospital for physio and other treatmens Those helpful free treatmens are long gone thanks to the ndp and the lieberals

    Those lucky people who have the funds needed to join the olympics are rare as is shown by the low numbers of people with limitations who were there.

  • alive

    1 year ago

    disability cheaters galore

    On this topic, all too many people get those handicap sign to hang in the window of their vehicles.
    It seems to be at the discretion of the doctor (any doctor) and though the sign may be justified say after an injury, the case is never re-examined and the sign is used forever more, even if no longer justified.
    I mean why not, it allows you to park in convenient places and if anyone happens to look, well then you walk with a limp for a few steps.

  • Bob Watts

    1 year ago

    X-Ray Vision.

    Thanks "alive" you have hit the nail on the head.
    People Judge! The Disabled are viewed as Worthy and Unworthy! How dare I have a Disability card in my car!
    If you met me on a good day I look, talk and walk like any normal person. I'm on welfare so I'm judged as a lieing, cheating, bastard and Judged as unworthy.
    But on bad days I have a cane and an electric scooter, you may never see me on a bad day, in the this case my Doctor speaks for me, on really bad times I'm in the Hospital, on those days I'm worthy.
    You know what is really sad? I judge others myself.
    I was once a businessman, now I'm a welfare bum, and I may be happier now than I've ever been.
    Now if a taxi parks in the handicap zone and a 20 year old jumps out and runs into the Bank, now that get me pissed off.
    Non of us are born with X-Ray vision to judge others.

  • alive

    1 year ago

    oh Bob

    Bob Watts
    What's eating you?
    Of course the signs are justified, when they are used by people who actually need them.
    My point is that many people got that sign ages ago, for very legimate reasons, but keep using the sign for the rest of their lives.
    What is it that you do not understand?
    They are cheaters, got it?

  • Bob Watts

    1 year ago

    Got it?

    Welfare a few years back decided to review the files of I think it was some 70,000 disabled people in BC, it cost about $4 million to find about 40 clients that no longer were considered disabled. The figure at the time, was that about 400 Disabled people commited suicide. It was a basic witch hunt. I got a letter in the first few weeks that I was clear. If your very very sick and the government is out hunting with the possible end result being cut off of a home, food, medication and you may die if you don't pass the test.
    Those disabled cards do have dates on them, mine is only good for 5 years at a time and cost about $25
    If you fine an expired card, you can turn the card holder in, just write down the info, like the serial number and the group that issused the card, like SPARC in Vancouver, they will recover the card.
    A few years back I was in Victoria for a medical appointment, when I got home the City of Victoria sent me a parking ticket in the amount of $150, my card had expired. I faxed them a Doctors note and now I'm on top of things, many Disabled don't have the mental power to manager their own lives.
    Do I get it? Yep thanks.
    Are people cheats, some are.
    I try to not judge, I don't have X-Ray vision nor ESP. Some of these people will get that $150 ticket and have to pay it, right...

  • Tieleman

    1 year ago

    Thanks Lisa - good points

    As someone who has covered issues of concern to people with disabilities in BC - and there are so many! - I appreciate Lisa's important perspective.

    My regret is that there isn't more coverage - the new cuts to funding for both people with disabilities and the organizations that support them are reprehensible.

    - Bill Tieleman

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